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Dementia and Home Care|What can we do from now on - Summary

  Dementia should be "cured," but it is difficult to do so. It's hard to do. In 2018, a wealthy American man has publicly announced that he will offer a "$400 million" prize to researchers who show a cure for Alzheimer's, yet there is still no answer to the question. https://nakamaaru.asahi.com/article/12074188 It will take another 10 years or more for the drug to go from practical use in the U.S. to being used in Japan. Japan, which lags behind in psychiatric care, still has a long way to go. What other measures should we take now? Facilities, Increase the number of dementia day services --------------------------------------------------------------------------- The usual "day service" under long-term care insurance is open to healthy people. There are two staff members and 40 to 50 residents. People from other municipalities can also come to the service. Day services for dementia are focused on "dementia" users. Four staff members are r

My mother has Young onset dementia | Part 2 | Back and forth between doctors, medicine, and supplements

 


Continued from Part 1...



First, once the MRI (mild cognitive impairment) diagnosis was made.

I took she to the doctor right away.




I'd choose a specialist from the Dementia Society, but...

---------------------------------------------------------


My first doctor's appointment was at a general hospital.


It was an "outpatient memory loss clinic" with only general knowledge.


I had to make an appointment even for a single CT scan.


The waiting time was too long.


The waiting time was too long to be suitable for a family doctor.




I saw it by chance.

"Certified Specialist of the Japanese Dementia Association"


https://square.umin.ac.jp/dementia/g1.html


I looked for the nearest neurologist among the




It was a place with a few nurses and a female doctor.


They seemed to be reporting to a conference every week, and there was a newspaper on the wall.


Anyway

She was diagnosed as having Alzheimer's disease.


She was prescribed Donepezil and Gramaryl.




I trusted my title as a specialist of the "Dementia Society."


If there is a new treatment, please let me know.


I want to know if there is a new treatment, or if there is a clinical trial for a new drug.




If there is a new treatment, let me know.


But every time, She would say, "This is the best way..." and kept prescribing me donepezil and glamaril.




I also bought a bunch of different supplements as well as medications.


I bought everything I could find on the Internet.


The amount of supplements and medicines took every day filled She palm.






One day, in a newspaper article.

"Clinical Trials - BAN2401".


It was about a clinical trial of one of Eisai's new Alzheimer's drugs, BAN2401, which is currently under development.


Clinical trials are clinical trials conducted by referring hospitals to test the effectiveness of a "new drug" before it is officially approved.


It's a great way to test a drug before it goes on the market.




I was told that clinical trials for BAN2401 had already started.


I went to my family doctor who is a specialist of the Dementia Society of Japan.


I told she about the new drug trial and that I would take it if I could.




"There's no cure for people like you. useless."


"It's useless!" 

she would spit.



my grandmother and great-grandmother both had dementia.


When I asked her if dementia was inherited, she replied, 


"I have a parent with dementia.


"Do you want to say that I have dementia too?


She reacted sullenly and I left the place.




That person was reporting our "juvenile dementia" medical data to the academic community.


In return for shes fame and other rewards. 


She ignores the patient's family's request for introduction of new drugs, saying that there is no cure.


When I tell them that the patient's family will have a hard time caring for the patient at home in the future.


"I don't care about that.


I felt distrustful of the doctor's attitude, and decided to change my family doctor.




"If you are dissatisfied with my treatment, I will not write a referral.


I had to find a family doctor.


I searched everywhere within an hour's drive, including general outpatient clinics.


But I couldn't find anyone who understood about "juvenile dementia" or "clinical trials.



So I went back.


"Japanese Dementia Association Certified Specialist"

https://square.umin.ac.jp/dementia/g1.html

I decided to choose a doctor from the list.








Betrayed, I decided to see a second "dementia society specialist.

-----------------------------------------------------


I told the next doctor about the situation and asked him to order a referral letter between hospitals.


The medication was the same as usual.


"Donepezil and Gramaryl.


The second "specialist" we saw was also very quiet, only seeing elderly Alzheimer's patients.


He had never dealt with juvenile dementia before.




Since there were no facilities being used together,


I knew I couldn't expect much, 


but I decided to talk to the university hospital about the situation and ask them to write a letter of introduction while. 


I looked for a university hospital that could refer me to a clinical trial




Why did it have to be such a hassle?


University hospitals are they won't see you for a general visit without a referral.


And they don't know how to determine if you can do a clinical trial or not.


whether or not they actually do.


I was told that they would have to diagnose me first and would not answer any questions.


So, no matter what kind of questions you have, make an appointment first.


I had to make an appointment, get a letter of referral, and have an initial consultation.



After I got the referral, I went around to university hospitals.


CT, MRI, and other blood flow tests.









I spent my days bouncing from one university hospital to another...

----------------------------------------------------------------


At Juntendo University Hospital's "Department of Neurology."


I met with the professor.


"We don't know if your symptoms are Alzheimer's or Levy.


"We don't introduce clinical trials."


"I think Osaka City University was conducting a clinical trial for familial dementia (hereditary), so you should go there.


"All I can say is, show me how you (caregivers) live..."


The visit lasted only a few minutes.


The visit lasted only a short time, no medication was given, and the symptoms were not assessed.






Next, I went to a doctor who referred me to

Osaka City University School of Medicine.


However, the

At that point, however, the clinical trial for familial dementia (genetic) had been suspended and ended.


I guess they were not convinced that dementia could be inherited by blood relatives.


Or they decided that there was no point in continuing any longer.


Did they decide that it was caused by the environment (stress, lack of sleep)?


We don't know the actual situation.






The third time I went to

Kanto Central Hospital


where there is a professor who is an expert in Parkinson's disease.

The results of myocardial scintigraphy and other tests


"you don't have Parkinson's."


He said, "It's not Parkinson's.


"So it's unlikely to be Levy."




Sure, she limbs don't shake.

Shes posture is poor, but she doesn't seem to fall down.


good sense of balance.


But can talk by myself.


she see children who shouldn't be there, and dead parents.


She often acts like she has visions in the middle of the night.


If it's not Levy, what is it, I ask.




"I don't know, maybe it's a mix of Alzheimer's and Lewy's?


Even the Parkinson's experts had no answer to that question.





She brain is still the same.


The hippocampus is abnormally atrophied, but the rest of the brain is only slightly atrophied.


But the results of the brain blood flow test

The blood flow test showed that the frontal and left side of shes head were slightly affected.


So I was wondering if there was a possibility of frontotemporal type.




Also, I was finally able to get a referral for a clinical trial.


I was going to meet with the clinical trial coordinator.









I finally met with the clinical trial coordinator, but...

----------------------------------------------------


BAN-2401 (Eisai's Alzheimer's and anti-amyloid-β agent)

Testing of new drugs. Clinical trial.



Appointments were made, and a month and a month went by before

We decided to do the final test before the clinical trial.


But on the day of the final test, I was told that I had failed the screening and the clinical trial was turned down at the last minute.




A simple math problem and a

mental test in a closed room, one-on-one with a parent and a coordinator.


The mental test was given in a closed room, one-on-one with a parent and a coordinator, but the math problem was just one or two points short of the "standard.

And the mental test.


The mental test also asked, "Are you happy to be alive now?" and "Do you have hope for tomorrow?"


I heard that the clinical trial cannot be conducted if the mental test shows depression.




He said he was sorry to hear that, according to the guidelines set by the pharmaceutical company.


I was told that once you fail the test, you cannot retake it, and I felt sorry for them.


The doctor also said, "If only you had come a little earlier...".




Appointments, referral letters, consultations at the university hospital, appointments for tests, tests, tests...


It's easy to let a few months or half a year go by with these things.




The first specialist's decision was to keep my mother on Donepezil.


The referral was brushed off, and it was too late.


I was told, 


"Do your best to take care of the rest at home.”


I wasn't convinced, even when I was told so.






It's called a "clinical trial."


New drugs don't always work.


Half the dose.

quantitative

Twice the dose.

Ten times the dose.


Placebo (fake drug) = glucose, etc.


In addition to being assigned like this, placebos (fake drugs) account for nearly 50% of the total.


The patient, family, and coordinator do not know which one will be assigned.


The patient, the family, and the coordinator do not know which one will be assigned.


If the actual effect is "double the quantitative dose," the probability of being assigned to that dose is probably less than 10%.




Even something like that.

It was important as a small ray of hope for the families who would be forced into hopeless "home care" in the future.




I continued to ask if there was a cure for dementia.


I kept asking if there was a cure for dementia, and if there was a new drug, I wanted to take the test again.


But I was told that that was the only clinical trial that was being conducted right now.


I was told that if I failed the test once, I could not take it again.


The clinical trial for familial dementia at Osaka City University was also closed and was no longer viable, so there was no point in going from one university hospital to another.


I ended up having CT scans and MRI scans.


They couldn't tell me for sure if these symptoms were Alzheimer's or Levy. 




Maybe it was my fault for not seeing more than one doctor at the same time.


I guess it was also my fault that I didn't go to the university hospital because I doubted the diagnosis of the "dementia society specialist.




Ten years of home care.

If I have any regrets, that's it.









Doctors who don't care about caregivers life...

-------------------------------------------


When I got back from the university hospital.


I was told by my family doctor


"I don't want to see someone who makes me write referral letters all the time."


"I've written a lot of referral letters to university hospitals, so you should go see a doctor at a university hospital from now on.


"There's nothing more I can do for you."


"There's nothing we can do for you anymore, except for general Alzheimer's."


I was told.


I looked for a doctor for the third time.





Even though it's a university hospital where a referral letter is a "must.


I learned for the first time that there are doctors who get upset if you ask them to write a referral letter, even though a referral letter is "required" at a university hospital.


I was told that the university hospital could not provide continuous treatment and that I should go to my family doctor for my medication.




Doctor only giving mother donepezil.


I was fed up with the "dementia society specialist".


We lost a lot of time because of the doctor.


Both of them didn't even consider the family members with dementia and the stress of the caregivers.








I go to "Kouno Method doctor"

------------------------------------


At that time, I happened to see the keyword "Kouno Method" on the Internet.


I was looking for a doctor who practiced the "Kouno Method".


I searched for a practicing doctor. There was one just an hour's drive away.


He had written a book called "Dementia Can Be Cured.

https://www.amazon.co.jp/dp/4837612350/


To be honest, I wasn't sure if I trusted them that much.




I just wondered if they would consider the family of the caregiver.


I asked if he would consider the family caregivers and if he would try new treatments, 


and after getting a conscientious answer, I decided to go to him.


He was not a "certified dementia specialist.





An elderly doctor, maybe in his sixties, came out to see me.


After a few consultations.


"Your mother has juvenile dementia.


"We don't know what category it is yet, but it's severe and rare.




"'I suppose you mother was a teacher too, anyway. too smart , that's the problem.


"Shes brain has a lot of capacity, so atrophy doesn't affect she like it does the average person, it just takes longer.


"In the meantime, let's stop the donepezil because it causes agitation and hallucinations.


"You're actually experiencing a lot of agitation right now.


"This drug works for the first six months or so, but it's not a drug you take for years.





"The symptoms are similar to schizophrenia.


"I'm going to start you on the schizophrenia medication, wintamine.


"We'll add more supplements to it and try different things."


And so.

In order to alleviate the symptoms, I was prescribed powdered medication with few side effects, such as "Yokukansan" and "wintamine".


But they didn't work at all.





In addition, you can use detoxifying agents, such as

Coconut oil and Felgard.


I was told that inexpensive rice bran supplements and ferulic acid would also work.


we decided to see how things went for about two years.


In the meantime, the problematic behavior gradually increased and did not get any easier.






She could still use cell phone, and note could write.


but She would get excited all of a sudden, talk to no one, try to leave at a certain time, etc.


She had waves of excitement at different times of the day,


I named the symptom, a bout of forgetfulness.










But there is no definitive answer... Is there a causal relationship between developmental disorders and dementia?

-----------------------------------------------------


I had further CT scans.


The hippocampus is abnormally atrophied (half to 80% of a normal person)


The peri-cerebral area is age appropriate.


The results were unchanged.


Blood flow tests showed decreased blood flow in the frontal and left temporal areas.




I've been using supplements and

I continued to use vitamins, antioxidants, etc.


But in the end, increasing the dosage tenfold had no effect.


It is said that juvenile dementia is difficult to treat.


People with developmental disabilities (ADHD) tend to get it.


Hypersensitivity to drugs


Multiple symptoms at the same time 

(dementia, multiple personality, schizophrenia, etc.)


It is also a problem for teachers who are too smart.


Even if the disease progresses, it is covered by other parts of the brain, so detection is delayed.


Accurate diagnosis is not possible.




After a while, the doctor was transferred from the hospital and disappeared.


He told me that him old mother had dementia and she left at home.


He told me that had left her mother at home and was taking care of her when she came home. I wondered if it had progressed.






That Kouno Method doctor said something meaningful towards the end.


"Are you developmentally disabled (Asperger's, ADHD,...)?




"Sometimes I don't understand other people's feelings.


"Stubborn and inflexible.


"I don't like to lie.


"I don't have many friends.


"I'm not good at cleaning up my room, it's a mess.


"It's black and white and there is no middle ground between trusting others and antagonizing others.



And my mother was in a similar situation.


She was a trash hoarder, rough with money, left the house just in time to be late, and had a habit of dependency.






The doctor noted.


"Developmental disorders (ADHD, Asperger's) are inherited.


"It's a trait, not an anomaly.


"It's one trait, not an abnormality, but it does run in the family.


"The structure of the brain (thought patterns and circuits) is more complex than the average person.


"The brains of the developmentally disabled are vulnerable to stress.


"If a developmentally disabled person develops dementia due to stress, for example, it may be more difficult to treat than usual, such as in young adults.


It's still in the "possibility" stage, he said.






Based on the symptoms alone, it does look like Levy to me.


But if it's not Parkinson's, and it's not Levy, then you need to look at the blood flow test results.


He said it could be "frontotemporal dementia."




The relationship between this developmental disorder and dementia.


This is the first mention of a frontotemporal





All the doctors I've ever had have just dismissed it as "unexplained.


So this is the first time I've learned something from them.



Compared to the doctors I've seen in the past, their explanations were more convincing.


But, I didn't see any solution at all.






The Kouno Method doctor left.


A new psychiatrist was appointed to the hospital.



However, the new psychiatrist was an "ordinary person.


Every time I told i restless and couldn't sleep.


he would prescribe a series of psychotropic drugs, which only produced side effects.




I decided to look for my next "family doctor".










Admission to a mental hospital was not my intention at the time.

-------------------------------------------------------


The comprehensive support at city hall

I have been recommended to go to a mental hospital.


When I went to the psychiatric hospital recommended by the city government, they told me that I was in a very active and energetic period and that if I waited for a while, I would feel better.


When I went to the psychiatric hospital recommended by the city, I was persuaded with a graph showing the curves.


We will prescribe medication, so please wait at home for a while.

If she really wants to, 


we can keep her in the hospital for three months.


If you really want to, we can keep her in the hospital for three months, but in the meantime, her symptoms will worsen, such as forgetting her face.




Seeing multiple doctors "at the same time" and

to take or not to take


The family can decide whether to take them or not.


The family could decide whether to increase or decrease the dosage.









About moving

---------------------------


As soon as I found out I had dementia, what I did immediately was


I had to house move.


The landlord of the apartment I was living in at the time wanted to demolish the apartment.




They want to clear the land once and dispose of it as housing for sale.


Therefore, he was asked again and again if he could move out.


If my mother dementia was discovered and she started to behave abnormally like my grandmother.


I wondered if I was not the kind of landlord who would honestly not support her.



Another reason is that


As the dementia progresses, the person may not be able to adapt to the new home and layout.


confusion every time they wake up in the morning, and They will urinate where the toilet used to be and try to leave from where the front door used to be.


Moving to a new place after the dementia has progressed can be very stressful.


The symptoms worsen at once.




So, I thought it would be better to hurry up and move before the dementia progressed.









There must be a system...

---------------------------------


The best thing is for dementia to be cured, for it to improve.


But if it doesn't improve, if it progresses on a one-on-one basis, as it did with my grandmother, we will be at the limit of our 24-hour hostility.


So, I tried to separate from my parents.




They would live separately, commute to each other's homes if necessary, and take care of each other.


My mother was on a pension of 50,000yen to 60,000yen a month, so we hoped that she would be able to receive public assistance and go straight to a special nursing home.


At that time, however, there was a waiting list of several years for a special nursing home.


and you had to have a nursing care level of 3 or higher to apply.




This is the government's strategy to reduce the number of welfare recipients.



So, I decided to apply for the third level of care at the same time I moved in.


The sooner we act, the better.





At the time, while I had experience caring for my grandmother.


I was still young and thought positively about everything.


If mother and a child with no relatives.


If you have a single mother and no relatives, you won't be pushed to the limit.


Like welfare.

There must be some kind of relief or exception. I thought.










my was still perceived as a "child."

----------------------------------------


Initially, my mother' symptoms were limited to occasional confusion about where they lived.


My mother was still to recognize that I was a "child.


There was a time when all the passersby looked the same, after they insisted that there was a "tombstone shop" in the neighborhood.




There was one employee I knew at City Hall at the time.


She insisted that she had come and gone.


She kept saying it over and over again, so I looked at the passersby.


I looked at the passersby and saw a woman of similar age, who reacted every time she passed.


Even though their faces and clothes were different.


It was about that time that I started to have trouble remembering other people's faces.


Maybe they all looked the same to she.





She wrote on a piece of note paper


"I'm stupid, I'm pathetic, I want to go back to normal, I want to get better.

I want to get back to normal, I want to get better.


When I told she to study to get smarter, she would open notebook and write letters or write the news on TV.





When I was anxious, I focused on my notes and wrote a lot.


mother was dependent on the notebook.



She was able to operate cell phone, and send and receive e-mails.


She was able to send and receive e-mails even when I was away from home.


I was able to "stay at home" to some extent.


It was not that much of a hassle.









I can't move in with just one parent...

------------------------------------------------


I approached private apartments.


But none of them would accept a single parent moving in.


mother were getting old and had not guarantor.


After all, they were always told that it would be difficult for them to move out if they were diagnosed with MCI (mild cognitive impairment).


In general, if you have dementia, you will end up fussing around like my grandmother.


When that happens, private apartments will be kicked out due to complaints.


It would be difficult to move again.




This is because they cannot adapt to their new home and layout.


Secondly, I applied for municipal and prefectural housing because my mother only have pension income and are tax-exempt, they applied for municipal and prefectural housing.




But it didn't work here either.


I checked with the city and the prefecture, I was told that not only people with dementia but also people with MCI (mild cognitive impairment) would be screened out before moving in. They said they would find out later.


I was not allowed to choose to move out of the house unless my children "lived with" me and took care of me.

I had no choice.


In the meantime

The deadline for moving out of the apartment was approaching.









Mother wants...

-----------------------------------


At the time, my mother demanded of me that if I wanted to move, I wanted to go here.

I really wanted to move to a shack by the sea, where I could fish and live a relaxed, slow life.


But the place my mother wanted me to go was

...assigned to a new school that had just been established in the past, where she worked for a while.



I was a student at the time, and I was getting good grades at school and winning awards for my paintings and novels.

It must have been an exciting time for she, and she has high expectations.


She clung to the idea of going there.

A place that would be she final home if he didn't get better anyway.


If the dementia progresses, she won't be able to move anymore.

So, I decided to look for a place to live, and I thought it would be better to follow her wishes...







Household separation...

-------------------------------------------

But even though we were moving in together, we at least resisted the urge to

"We decided to separate our households.


My parents have a low pension income and are exempt from city and prefectural taxes.


So, we decided to create two households, and by separating the households and each becoming the head of the household, we would be able

By separating the two households and making each the head of the household, the tax, health insurance, and nursing care insurance premiums for the parents would be reduced.


I thought at the time, "This should be the same as letting my parents live alone. That's what I thought at the time.


I thought that even if I couldn't get welfare benefits.


I thought that even if I couldn't get welfare, as a tax-exempt household, I should be able to get priority to move into a special care facility.





A real estate agent told me a story about caring for his mothers...

------------------------------------------------------------

I approached the real estate agency about finding a place where I could live with my parents.

I spoke to the head of the real estate agency at the time.


"Dementia, I understand.

"My brother, his wife and I were living with our parents.


"My mother had dementia.

"So even though there were four caregivers, myself, my wife, my brother and my brother's wife, 


"My brother said, 'I'll have to take her to the Heavenly Kingdom,' and he even thought about suicide.

"One winter morning, she was found frozen to death in a vacant parking lot a few hundred meters away from her house after wandering around.


"If she hadn't, my brother would have died.

"So I really understand how hard it is, and your decision is amazing.

"I really understand how difficult it is.



At the time, my honest impression was, "What am I exaggerating about...?


Also, after I moved in, I received an email from a staff member of the real estate agency.

Just one word

"I admire your determination."


The person must have been of Chinese descent, though.

In hindsight, he may have been saying that because he foresaw the future of care and the dark clouds.


It's normal for people on the continent to live with their families.

It seems that he had heard a lot about dementia.



He sure didn't get any help because there he four of us and her mother owned the house, 

but it's just the two of us and we don't have any relatives to rely on, so there should be some help.


At the time, I was still wondering what he was talking about.

I didn't think it was actually a gateway to hell.


Anyway, we moved in.

We moved into the same room, but we registered as a two-family household (separate households).


mother are mother and I am I, so we split up the tax payment and the payment of health insurance and nursing care insurance.


Thanks to this, my parent's health insurance and nursing care insurance premiums were reduced. Thanks to this, my parents' health insurance and nursing care insurance premiums were fixed at low amounts.


Even so, my mother' pension is only 50,000yen to 60,000yen a month. Mother have no savings.


The amount my had to pay was large, though.





I went to the city hall, but I was still in "nursing care level 2".

------------------------------------------------------------------

After moving in.

After the interview and investigation, I was easily given the "Care level 2" rating.


I applied to the city hall for the level of care required.

Even after that, it was not easy to get the level of care required to be 3.


She was not allowed to apply for a special care facility, and was asked to remain on the waiting list and maintain the status quo.


Because I can move.

mother's healthy.

The reason was that she was mobile, healthy, and talked a lot.



I had to reach the third level of care.

I can't apply to move into a facility until I need third level of care.



I don't know what's going to happen to me.

What kind of symptoms did my grandmother have?


I complained, but nothing changed.





Facilities that don't last, hospitals that kick she out...

-----------------------------------------------------------------------

We tried small-scale multifunctional facilities, day care facilities, and short-stay facilities, but none of them lasted long.


Even when I entered a facility, I was constantly talking until late at night.

I couldn't get along with the other users (elderly people), and the staff said I was a handful.


I was told that it was especially difficult to stay overnight.



She's been in car accidents and illnesses.

She was even admitted to the general hospital a couple of times.


kicked out of the hospital after about three days for making too much noise.

She couldn't sleep quietly in an unoccupied place.


She kept hitting the nurse's call.

She kept tearing out intravenous drip, etc.


forced to sleep at the nurses' station from the second day.

I gave her a bunch of prescription medications.

None of them had much effect.


Considering the excitement I felt when I came back.

I would have preferred not to let her go and take her around.


But at that time, I was still aware that I was basically a child.

At that time.




I'm leaving in the morning! Back at midnight! I've been taking mother around.

--------------------------------------------------------------------

My mother would come in the morning.

"Come on, let's get out of here!" 


mother would say excitedly, getting ready to go outside.

Once my and mother went out, she didn't come back until midnight, so she usually got home at 11pm.



In those days, when I said I'd take she around.


my in a car.

Or by train.

We often rode motorcycles.


But She started to make a lot of noise on the train, saying he couldn't walk because his feet hurt, or he talked too much on the train and other passengers complained.

I began to avoid trains.


I also lost my strength to ride a motorcycle for a long time. 

I started to car drive around more and more.



I couldn't work as much as I wanted to.


I mean...

It was "impossible" to have a job that required a third party to spend time with me.


I was always around my mother.




At the very least, I wanted to keep my mother from developing dementia.


My goal was to get them into an institution before she became completely hostile like my grandmother.

I took my mother around.


To stimulate she's brains, to keep their dementia from advancing.

I made it my top priority.





Start a business selling things online...

-----------------------------------------------------

A job where my are hired by someone else.

It had long become impossible to work for someone else, to work part-time or full-time.


It had long since become impossible.

The economy couldn't sustain itself by just taking mother around.

So, I worked hard to earn some coins by doing some kind of side job.



At the time, when I told this to people I knew


"Nursing care is tough.

"Nursing care is not good.


They suggested that I buy and sell things on the Internet. 

In simple terms, it's like resale and auction.


Buy low, sell high.

That's all there was to it, but there was no time constraint by a third party.

I could do it to a certain extent, even with my mother around.


However.

The time I spent working and the distance I traveled were directly related to my income.

So, as I became less and less able to move, my income decreased proportionally.




Relatives to cut ties with, students...

-------------------------------------------

I had no siblings, and my grandparents had already passed away.

I had no relatives other than my parents.


However, her mother had a cousin and a few distant relatives.

She also had a student from school.


I didn't really want your support or your money, but I did want to be able to contact you and talk to mother.

So, I wrote a letter to each of them on mother's behalf.



I contacted one of the students  mother had taught.

She later became an announcer for a terrestrial television station, and when I contacted office, I received a printed response from shes manager


"She remembers that she was taught by a teacher.

"but we are too busy taking care of my parents to see you.

"Good luck with your home care.


This was the reply I received.

After that, she seemed to be posting pictures of cafes and sweets on Instagram, but that's about it.


I wrote my cousin a polite letter.

One ignored me.


The other cousin...

The other cousin said, 


"We have our own lives.

"I can't help you.

Please do your best. Good luck." 


The mail was recorded as delivered.

After that, there was no more contact.


The only distantly related woman.

My grandfather's nephew, the wife of a university professor, who I told you about before.


She cared about me a lot and talked to me sometimes.

She was over 90 years old, lived alone, and had no children.

I could only see her once in person, and our conversations were few and far between.




In the next article, "Part 3.


What happened after I was rejected from the clinical trial?


The start of wandering.

The intense excitement, the

The daily police calls.

Trouble in the neighborhood...


And then the government's protection, the expense claims...



I'd like to talk about it.





----------------------------

Caution.


I am Japanese. The text is from DeepL automatic translation. Please understand that some parts may be difficult to read.




Final Addendum: September 28, 2021

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